More than 80 per cent of Canadian dementia patients die in in institutions or in institutional care. Barbara Mason wasn't having that for her mother. The 87-year-old matriarch died at home last October thanks to the province's home dementia care program.
N.L. home dementia care program allowed St. John's woman to 'die with dignity' at home with loved ones, 'the way it should be'
“My mom was just walking around the upstairs balustrade back and forth. Her bobby pins are all out, her hair was a mess and something happened. The dementia was there,” Mason said.“All that's in the back of your mind is long-term care. And I'm thinking, that's not happening, because there hadn't been a model that I was familiar with in Newfoundland that didn't scream, ‘She's going into a building with walls and three other people in her room,’” Mason said.
Dr. Roger Butler is the medical lead for the provincial dementia home-care program. On that team are two nurse practitioners and an occupational therapist who make house calls and communicate with each other to determine the best course of treatment.
He says seniors with complex health-care needs would be served better by remaining in their home as long as possible with supports suited to their specific needs. “We try to get to those patients before the crisis happens. And by getting them before the crisis happens, we can do upstream work to keep them out of the hospital,” Butler said. “We've palliated now almost 100 patients in their homes. They've died in their homes with dementia. That's unheard of. In Canada today, of the population die in their homes. The rest of them are dying in institutions or in institutional care.
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