New South Wales couple Charles and Bridget Poolman had never heard of diffuse intrinsic pontine glioma before.
Charles and Bridget Poolman had never heard of diffuse intrinsic pontine glioma before the deadly type of brain tumour, also known as DIPG, changed their lives in a matter of months.couple's daughter Evie first started experiencing migraines, which a doctor initially told them was nothing to worry about.
But the nine-year-old's symptoms progressed and just before Christmas in 2020 she complained that she was "seeing double".New South Wales couple Charles and Bridget Poolman lost their daughter Evie to diffuse intrinsic pontine glioma."She was a perfectly healthy, active child who had just celebrated Christmas and had a wonderful time. Then they did the CT scan," the couple told 2GB's Ben Fordham.
The couple said the treatment plan Evie underwent is the same treatment children received 60 years ago."We thought we might be different and we held out hope. Tragically we were not different."According to the charity Run DIPG, DIPG cancer primarily affects children with most diagnoses occurring between six and nine years of age.
It makes up 10 to 15 per cent of all brain tumours in children, with about 20-25 new diagnoses per year in Australia. Fewer than 10 per cent of children with the tumours are alive more than two years after their diagnosis."It's just unacceptable that people are confronted with this in this day and age," he said."The reality is treatment hasn't changed in 60 years and 25 per cent thereabouts of all the childhood deaths from cancer every year are relating to this cancer.
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