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BARCELONA/PORTBOU, Spain — Pol Dominguez, 11, is enjoying his summer holidays in Spain. But unlike most children his age, he does not spend his days at the beach or pool, instead staying indoors to avoid ultraviolet radiation that could be deadly for him.Dominguez has xeroderma pigmentosum , a rare disease that affects his skin and eyes. Patients are unable to repair their DNA from solar damage, which puts them at high risk of developing cancer.
Dominguez's school has adapted windows and lights so he can have as normal a life as possible, although he needs to bundle up for outside activities and carries a UV meter to check that an environment is safe."It's very hot and I use a fan to make it cooler," he told Reuters on one of his last days of school, using a portable fan underneath the shield he wears over his face.
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