Young onset dementia: Growing group faces financial, social challenges

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Young onset dementia: Growing group faces financial, social challenges
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Over the past 10 years, there has been a steady increase in the number of newly diagnosed young onset dementia cases. Read more at straitstimes.com.

SINGAPORE – Retired IT professional Dan Ridon had no idea what a tea dance was, or what it would be like to dance with about 15 strangers at the Kebun Baru community club.

The couple joined Dementia & Co, an organisation which runs activities for those living with dementia, at the recommendation of a daycare centre which rejected Mr Ridon as he was too “young”. He was also not interested in their activities which were meant for older seniors. Unable to find support, she and Jamie set up the peer support group. They organise forums, tea parties, meals, gardening, art and cooking sessions at their home, as well as outings to places like museums and walks in parks.

“It’s important to have a peer support group, and to reach out to those who have just been diagnosed and are feeling depressed,” Ms Lim said. “This is where they can clear the shame and fear, and learn to have some fun instead.”‘Don’t rob them of their independence’: Helping patients design life around dementiaOver the past 10 years, the National Neuroscience Institute at Tan Tock Seng Hospital has seen a steady increase in the number of newly diagnosed YOD cases.

Stroke survivors also have an increased risk of vascular dementia. The Singapore Stroke Registry Annual Report 2020 showed that there were 8,846 stroke cases in 2020, of which 1 in 4 cases were in people aged 59 years and below. They may also have difficulties with executive function, such as poor time management when they were previously organised. Some also struggle with language, such as finding the right word, spelling, reading or difficulty with understanding others.

Dementia Singapore, a dementia care social service agency, piloted the Young Onset Dementia Club in January 2022 to better address their unique needs. Ms Lim of Dementia & Co is an advisor and facilitator of the club. Take Madam Chin Chui Foong, for example. The 60-year-old was diagnosed with Alzheimer’s disease at age 55.

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