Long COVID made me retreat from the world, entering into the realm of invisible illnesses where sufferers are ignored, dismissed and struggle to find the help they need.
For months I couldn't read. Debilitating fatigue crushed me. Each morning I'd wake up heavy, my face pale and puffy and my head full of concrete.
As I searched for answers I discovered a medical system woefully inadequate for conditions like mine. I'm slowly making my way back to a new normal, not quite healthy but able to live. It took a while to realise this was what was happening to me. But I've had injuries before, how bad could it possibly be, I thought.
"Around 70 per cent of people with long COVID present with signs and symptoms that are consistent with dysautonomia and what that means is that we can often objectively measure some of the things that are misfiring in their autonomic nervous system to bring about this diagnosis." An app his team had developed to monitor stroke patients after they left hospital was quickly re-purposed to monitor patients with COVID-19. It launched in early March 2020 and within days thousands of people had signed up.
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