There were signs. He was picking up letters a little slower than his classmates in kindergarten, and he was so, so wiggly.
Thomas, the red-headed youngest of three, was clearly bright, obsessed with the Titanic and shipwrecks in general. Once he covered the floor with ice cubes and declared the melting puddles were icebergs.
The ambulance arrived minutes later. He was unconscious. The crew suggested we drive him to the hospital, that there could be COVID in the ambulance. We might never need it, the neurologist said. But we had to use it just two weeks later when Thomas had a second, frightening seizure hours before an MRI and an EEG to measure his brain waves. Later that day, he was diagnosed with epilepsy, cause unknown.
Women were quitting their jobs in droves, and I understood why. It all seemed impossible. At one point, I called his kindergarten teacher. We can’t do school right now, I told her. Things are too much of a mess. He wouldn’t sit through the virtual lessons. She said she understood and told me not to worry.Article contentWhen the day camp he was supposed to attend that summer was canceled, my mother started watching him.
By midsummer, we had our first follow-up with the neurologist. Thomas was a whirling mass of energy, trying to turn the light off in the exam room and climb onto a rolling table designed to hold the doctor’s laptop. Halfway through the appointment, I opened the door and shoved the table into the hallway.
In late September, he met for the first time with the reading specialist. Within minutes, his head dropped, he got confused and struggled to speak. She rushed him to the office, where my husband was waiting, suspecting a seizure. His neurologist adjusted his meds repeatedly; we did two more EEGs. We were unable to sort out exactly what was happening. Still, I was grateful that he wasn’t having big scary seizures.
It was what he needed. But his progress is slow and uneven. He learns things, but sometimes they don’t seem to stick.
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