Move to Cure ALS event supports unique B.C. research model
It was a strong turnout for the ALS Society of B.C.’s Move to Cure ALS event in Vernon’s Polson Park Saturday, June 10.
Wendy Toyer, executive director for the ALS Society of B.C., was at the Vernon event Saturday. It’s the signature fundraising event for the society every year, and already $3 million has been raised for research, Toyer said. Toyer calls this the “COVID model,” referring to the efforts to create an effective vaccine which produced results in just one year.
She said in the past in Canada, scientists could apply for a research grant that would take 12 to 18 months to materialize, and they could receive about $100,000. “And the federal government is looking at this model saying this isn’t happening anywhere else in the world,” Toyer said. “We’re saying no, but the model that’s current is broken, it doesn’t work.”
“It’s devastating,” she said. “You wonder how you can help that person that’s got it as a caregiver, how you can help them, how you can still continue on with your life. It takes everything away from that person, as well as everybody else around them.”
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