Colin Farrell, who is launching his foundation to support adult children who have intellectual disability through advocacy, education and innovative programs, recalls the first questions he asked the doctor after his son was diagnosed with Angelman syndrome.
The actor is launching the Colin Farrell Foundation to support adult children who have intellectual disability through advocacy, education and innovative programsJulie Jordan is an Editor at Large for PEOPLE. She has been with the brand for 25 years, writing cover stories and features and managing special issues including the Beautiful Issue and Sexiest Man Alive.
It wasn't until James was about two and a half years old that a pediatric neurologist suggested he be tested for Angelman syndrome, a rare neurogenetic disorder that causes severe physical and intellectual disability. "One of the characteristics of Angelman syndrome is outbreaks of laughter," says Farrell. "And the doctor saw that James was laughing a lot and doing this movement .
James "has worked so hard all his life, so hard," Farrell adds. "Repetition, repetition, balance, his jerky gait. When he started feeding himself for the first time, his face looks like a Jackson Pollock by the end of it. But he gets it in, he feeds himself beautifully. I’m proud of him every day, because I just think he’s magic.
What Is Angelman Syndrome? Everything to Know About the Rare Genetic Disorder Colin Farrell’s Son James Has
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