Calgary toddler with very rare condition gets life-changing home renovations

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Calgary toddler with very rare condition gets life-changing home renovations
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  • 📰 GlobalCalgary
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Imagine having a rare condition where just minutes in the sun could kill you. It's reality for a Calgary toddler. Thanks to several companies, his home is no longer like prison.

A network of volunteers from several companies have stepped up to change the lives of a Calgary family. The focus is an adorable toddler with a life-threatening condition.

Ashley and Jake’s dad, Mathew, explained the complexities to navigate everyday life. Since UV rays can be deadly for Jake, just eight minutes in the direct sun can cause third-degree burns.It means every single venture outside their yard is planned meticulously in advance, including going to play centres and to the grocery store.“We need to know where are we parking, what way is the car facing,” said Mathew.

Jake’s family tried their best spending thousands on a film coating on their windows to stop the UV rays from coming inside, however it quickly broke down and left a messy, foggy covering that didn’t protect their son effectively. The couple launched a search for windows specially designed to block UV.

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